501c3 non-profit (Tax ID: 82-2383660)
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DrakeRFoundation@gmail.com

2607 Woodruff Road, Set E. PMB 352

Simpsonville, SC 29681

This site is owned and operated by the Drake Rayden Foundation, a 501c3 Nonprofit.  Copyright 2019 Drake Rayden Foundation

 

The research has begun... 

Drake, and children like him, are trying to hang on..

Please give the gift of life.

OUR FUNDRAISING GOAL

Our goal is to raise $3,000,000 in 2019.  But we need your help to get there.  Learn about the treatment.

CURRENT FUNDING PROGRESS

Second Goal: $300,000

Funding in this level allows for the critical research in the laboratories to show validity to the FDA, and other agencies, of the working vector to move the treatment into patient trials. 

Watch our latest interview with Your Carolina Live with Jack and Megan

Due to your support, we are thrilled to announce that we met our

initial funding goal of $70,000 in just 10 days!  The Gene Therapy has now begun!

Drake's future involves you. 

Please donate, while he still

has a tomorrow. 

What is NKH?

Life with NKH told by Drake's parents

Eric and Tarah O'Sullivan give a parent's perspective of what life is like for their son, Drake, who lives with a terminally ill

diagnosis, called NonKetotic Hyperglycinemia. Most doctors have never heard of the disease, and therefore treating their son is almost impossible.  Listen to their compelling story as they fight

to bring NKH awareness, better NKH treatment, and save Drake's life

before it is too late. 

$70K

$300K

Funding in this level allows for the critical research in the laboratories to show validity to the FDA, and other agencies, of the working vector to move the treatment into patient trials.  

$3M

This is the final step in getting the life altering treatment into patient trials.

This is the first step of funding.  This goal creates the vectors with the working gene.

 
 
 
 Treatment

Now, with your help, we have an amazing opportunity to put a functioning gene back, and give Drake, and children living with NKH, a future without suffering.

 

 
 
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